Journal article
Measurement Properties of the Attitudes to Gene Therapy for the Eye (AGT-Eye) Instrument for People With Inherited Retinal Diseases
MB McGuinness, AC Britten-Jones, LN Ayton, RP Finger, FK Chen, J Grigg, HG Mack
Translational Vision Science and Technology | ASSOC RESEARCH VISION OPHTHALMOLOGY INC | Published : 2022
DOI: 10.1167/tvst.11.2.14
Abstract
Purpose: To assess the measurement properties of the Attitudes to Gene Therapy for the Eye (AGT-Eye) instrument among Australian adults with inherited retinal diseases (IRDs) and parents/caregivers of people with IRDs. Constructs of interest included sources of information, knowledge of treatment methods, awareness of treatment outcomes, and perceived value of gene therapy for IRDs. Methods: A cross-sectional, self-reported, 30-item questionnaire was administered in English from January to June 2021. It was predominantly conducted online with phone and paper alternatives available. Rating scale models were generated separately for each of the four subscales to assess fit, discrimination, and..
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Awarded by Retina Australia
Funding Acknowledgements
Supported by a Retina Australia medical research grant (to HGM, FKC, JG, and LNA) and by funding from the Australian National Health and Medical Research Council (Centre of Research Excellence Grant GNT1116360 to FKC, JRG), Fellowships (MRF1142962 to FKC and MRF1151055 to LNA), and an Ideas Grant (GNT1188694 to FKC). The Centre for Eye Research Australia receives support from the Victorian Government through its Operational Infrastructure Support Program.